Logo

International Journal of Medical Research & Health Sciences (IJMRHS)
ISSN: 2319-5886 Indexed in: ESCI (Thomson Reuters)

Abstract

Good practices in the conduct of a patient registry

Author(s): Manu Somanath, Anup Nair, Rituraj Mohanty, Uttam Barick, Arun Gowda and Anand Patil

A patient registry is defined as “a structured system that practices observational study methods to collect constant data (clinical and other) to evaluate detailed outcomes for a population defined by a particular disease, condition or exposure, and that serve one or more predetermined scientific, clinical, or policy purposes”[1]. The data derived from patient registries can provide a real-world view of clinical practice, patient outcomes, safety, and comparative effectiveness [2]. This article highlights the good practices that are essential to the design and conduct of patient registries. To provide a brief insight on the good practices to conduct patient registries. The key aspects to be considered when conducting a registry are accessibility, set up of the right research questions and maintaining the confidentiality and transparency of patient data. A patient registry must be conducted without affecting the ethical rights of the patients.


Card image
Subscribe Now!
Scope Categories
  • Clinical Research
  • Epidemiology
  • Oncology
  • Biomedicine
  • Dentistry
  • Medical Education
  • Physiotherapy
  • Pulmonology
  • Nephrology
  • Gynaecology
  • Dermatology
  • Dermatoepidemiology
  • Otorhinolaryngology
  • Ophthalmology
  • Sexology
  • Osteology
  • Kinesiology
  • Neuroscience
  • Haematology
  • Psychology
  • Paediatrics
  • Angiology/Vascular Medicine
  • Critical care Medicine
  • Cardiology
  • Endocrinology
  • Gastroenterology
  • Infectious Diseases and Vaccinology
  • Hepatology
  • Geriatric Medicine
  • Bariatrics
  • Pharmacy and Nursing
  • Pharmacognosy and Phytochemistry
  • Radiobiology
  • Pharmacology
  • Toxicology
  • Clinical immunology
  • Clinical and Hospital Pharmacy
  • Cell Biology
  • Genomics and Proteomics
  • Pharmacogenomics
  • Bioinformatics and Biotechnology